Speedsterbeast
New Member
I tend to like posting threads on this forum related to signs musch more than random stuff, but I feel the need to share this tonight.
If anyone is or knows who is using topical steroid creams please stop immediately!
Below are some links to some websites that will explain it better than me, but let me just say that I am speaking from a lot of research from a lot of good sources, and unfortunately, personal experience.
I have been going through Topical Steroid Withdrawal (TSW) since the beginning of November. It was very disappointing to have to find out from my own research, instead of my doctor’s knowledge why exactly I have been suffering like I have been. It turns out that from over ten years of using steroids as a skin treatment, my adrenal glands have stopped working properly. The good news is that I will make a full recovery from this. The bad news is that it already is, and is going to be a horrible f#c@ing battle that may last up to three years. I won’t bore you with the details, except to say my nights are filled with fighting for three hours sleep with ice packs around my neck and arms to lessen the itching and nerve “pin pricks” that make me scratch my skin raw every night. On the upside, I haven’t started the “skin oozing” stage yet. Apparently I have to look forward to that in months 4-6.
Last week I was fortunate enough to speak over the phone to the pioneer of this discovery, Dr. Marvin Rapaport from UCLA. He has dedicated his life’s work to getting topical steroid creams banned from being used as treatment of any kind. He explained to me that eczema attacks us as infants and “burns out” in our adolescence. However, when prescribed corticosteroids as treatment, the skin becomes more inflamed from the treatment and it appears to be worsened eczema. So what do the doctors do? Prescribe us more and STRONGER steroids. And the cycle continues; for years for some of us. He also warns that many doctors either are uninformed of this, or deny it without an open mind. Dr. Rapaport also offers his advice to any doctor who will listen. He simply told me to tell my doctor to call him if he so desires at any time. I was sooo lucky to get to talk to this intelligent, patient, and selfless individual, who, I’m sure, will go down in the medical history books when he finally gets his message across to the medical world.
Anyway, here are the links. Some of the stories are very well documented by people who have gone, or are going through this horrific ordeal. And be warned that some of the photos are shocking. If anyone has any questions they’d like to ask me, I’d be happy to try.
Thanks for reading
-Cory
http://redskinsyndrome.squarespace.com/
http://itsan.org/
If anyone is or knows who is using topical steroid creams please stop immediately!
Below are some links to some websites that will explain it better than me, but let me just say that I am speaking from a lot of research from a lot of good sources, and unfortunately, personal experience.
I have been going through Topical Steroid Withdrawal (TSW) since the beginning of November. It was very disappointing to have to find out from my own research, instead of my doctor’s knowledge why exactly I have been suffering like I have been. It turns out that from over ten years of using steroids as a skin treatment, my adrenal glands have stopped working properly. The good news is that I will make a full recovery from this. The bad news is that it already is, and is going to be a horrible f#c@ing battle that may last up to three years. I won’t bore you with the details, except to say my nights are filled with fighting for three hours sleep with ice packs around my neck and arms to lessen the itching and nerve “pin pricks” that make me scratch my skin raw every night. On the upside, I haven’t started the “skin oozing” stage yet. Apparently I have to look forward to that in months 4-6.
Last week I was fortunate enough to speak over the phone to the pioneer of this discovery, Dr. Marvin Rapaport from UCLA. He has dedicated his life’s work to getting topical steroid creams banned from being used as treatment of any kind. He explained to me that eczema attacks us as infants and “burns out” in our adolescence. However, when prescribed corticosteroids as treatment, the skin becomes more inflamed from the treatment and it appears to be worsened eczema. So what do the doctors do? Prescribe us more and STRONGER steroids. And the cycle continues; for years for some of us. He also warns that many doctors either are uninformed of this, or deny it without an open mind. Dr. Rapaport also offers his advice to any doctor who will listen. He simply told me to tell my doctor to call him if he so desires at any time. I was sooo lucky to get to talk to this intelligent, patient, and selfless individual, who, I’m sure, will go down in the medical history books when he finally gets his message across to the medical world.
Anyway, here are the links. Some of the stories are very well documented by people who have gone, or are going through this horrific ordeal. And be warned that some of the photos are shocking. If anyone has any questions they’d like to ask me, I’d be happy to try.
Thanks for reading
-Cory
http://redskinsyndrome.squarespace.com/
http://itsan.org/
